Friday, July 6, 2018

Phenobarbital and Kepra for Katharine

We will slightly decrease Katharine's phenobarbital in hope that it will be enough to restore her appetite. We can only wean over a matter of weeks, not days, unlike with steroids. Meanwhile, we might add Kepra, another seizure med, other wise known as Levetiracetam (the pronunciation of which sounds as if someone is HAVING a seizure.)



Today, we successfully fed her an entire can of AD by mouth, a total of approximately 186ml of water and AD. She finally perked up by 6 p.m. I'm assuming that it was about that time that she had had enough calories to make her feel better. We will need to push more food faster so that she feels better sooner. We are waiting for her to eat on her own. I do not want to try stimulants yet until she is eating on her own. The mirtazapine did not work for her the other day when she was not eating on her own.

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